tag:blogger.com,1999:blog-4953876697232838920.post5689173886726099423..comments2024-03-13T03:23:21.910-04:00Comments on Fierce Pierce: Dr. Warf updateNik, Lindsay and Pierce Frankshttp://www.blogger.com/profile/16914427099218563113noreply@blogger.comBlogger16125tag:blogger.com,1999:blog-4953876697232838920.post-81310270626582858332013-01-17T13:50:03.240-05:002013-01-17T13:50:03.240-05:00I don't comment often but I follow little Pier...I don't comment often but I follow little Pierce and pray for him. I like Dr. Warf and I think he is giving you excellent advice. Silly me, like I'd know, but there's always that gut feeling. I will continue to pray and look for good things to happen for all of you!Beverlyhttps://www.blogger.com/profile/17103016272659697131noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-25319735285409113592013-01-16T23:55:44.674-05:002013-01-16T23:55:44.674-05:00Ok, just caught up! Thanks for the details in the ...Ok, just caught up! Thanks for the details in the update so we know specifically how to pray! Glad you have some more clarity in the plan of action for your sweet guy!Mandy Gramkowhttps://www.blogger.com/profile/12971940745136508471noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-25266301074427577182013-01-16T22:50:32.809-05:002013-01-16T22:50:32.809-05:00Will be continueing to pray for your miracle boy. ...Will be continueing to pray for your miracle boy. God will continue to walk beside you all. WE are up here in Mass and we LOVE children's hospital so much. We have seen multiple specialist, unfortunately not neuro, but I am sure they are phenomenal too! If it is God's plan for you to come here, please contact me for anything that you could need help with, questions etc... Until then you are in my prayersMommato4miracleshttps://www.blogger.com/profile/08650111958186979950noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-70203508536614459372013-01-16T19:59:10.845-05:002013-01-16T19:59:10.845-05:00O, Lindsay! So overwhelmed with all this wonderful...O, Lindsay! So overwhelmed with all this wonderful news! Thankful for answered prayers and the wisdom Dr Warf was able to give you all. We'll be continuing to pray for wisdom for you and Nik and you proceed.Ashleehttps://www.blogger.com/profile/16302841305582393050noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-43285033593683681062013-01-16T18:06:14.600-05:002013-01-16T18:06:14.600-05:00So thankful for positive news and better options. ...So thankful for positive news and better options. I have been praying for you all! Anonymoushttps://www.blogger.com/profile/12285275299525495502noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-10040297991904112892013-01-16T17:36:12.461-05:002013-01-16T17:36:12.461-05:00I think that contacting Dr. Warf sounds wonderful....I think that contacting Dr. Warf sounds wonderful. We had to travel out of state to sort out some hearing issues and it has been well worth the extra time and effort.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-33702986110101779532013-01-16T17:26:09.682-05:002013-01-16T17:26:09.682-05:00Thanks Tatum!Thanks Tatum!Nik, Lindsay and Pierce Frankshttps://www.blogger.com/profile/16914427099218563113noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-14752598875703191192013-01-16T17:25:55.136-05:002013-01-16T17:25:55.136-05:00Yes, Dr. Warf discussed with us in great detail th...Yes, Dr. Warf discussed with us in great detail the severity of overdrained ventricles in a former preemie. He said older preemies (teens-young adults) who are shunted with normal to slit ventricles are his most complicated patients to treat. For that reason, he thinks shunting should be avoided as much as possible.Nik, Lindsay and Pierce Frankshttps://www.blogger.com/profile/16914427099218563113noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-50434792604852080822013-01-16T17:24:43.092-05:002013-01-16T17:24:43.092-05:00Thanks Jackie!Thanks Jackie!Nik, Lindsay and Pierce Frankshttps://www.blogger.com/profile/16914427099218563113noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-21564877868468144402013-01-16T17:24:34.468-05:002013-01-16T17:24:34.468-05:00Dr. Warf was amazing Jessi! Thanks!Dr. Warf was amazing Jessi! Thanks!Nik, Lindsay and Pierce Frankshttps://www.blogger.com/profile/16914427099218563113noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-30476270440281967652013-01-16T17:12:24.410-05:002013-01-16T17:12:24.410-05:00Understood every word and all is very encouraging!...Understood every word and all is very encouraging! Wishing you all the best in bringing the two teams together!Tatumhttps://www.blogger.com/profile/14205782767133024782noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-15104507230186107312013-01-16T16:18:15.740-05:002013-01-16T16:18:15.740-05:00Read every word, and sad to say, understood all th...Read every word, and sad to say, understood all the way. Prayers continued as you travel this road with your precious little one.Anonymoushttps://www.blogger.com/profile/09666533742291707976noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-78932775752831631952013-01-16T16:06:18.045-05:002013-01-16T16:06:18.045-05:00Oh another thing I wanted to tell you is that Jack...Oh another thing I wanted to tell you is that Jack has very, very small ventricles and the pressure is turned all the way up, highest pressure, on both shunts. It's definitely a problem. I worry about brain growth all the time. Interestingly enough, no one seems to have any options for us regarding this. Maybe we need to schedule a consult with Dr. Warf sooner rather than later. Jessihttps://www.blogger.com/profile/00253576467920143167noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-27387338313599925592013-01-16T16:03:45.401-05:002013-01-16T16:03:45.401-05:00Wonderful, my vote and prayer is for total healing...Wonderful, my vote and prayer is for total healing apart from any need for medical intervention..agreeing with you all for the miracle that is Pierce.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-64183579558465980592013-01-16T16:01:10.266-05:002013-01-16T16:01:10.266-05:00#4 is my vote and prayer for Pierce as well! So g...#4 is my vote and prayer for Pierce as well! So glad you have more clarity and an amazing opinion on board!! Praying for continued clarity AND healing!Anonymoushttps://www.blogger.com/profile/06134632327593433396noreply@blogger.comtag:blogger.com,1999:blog-4953876697232838920.post-61437258204858986542013-01-16T15:59:11.322-05:002013-01-16T15:59:11.322-05:00Read every word! And awesome! So glad you connecte...Read every word! And awesome! So glad you connected to Dr. Warf! I can believe you've never had a full MRI. That is shocking to me. I am now interested in doing a consult with Dr. Warf at some point (probably when they are saying Jack needs a revision). So glad you have this clarity and a game plan! Jessihttps://www.blogger.com/profile/00253576467920143167noreply@blogger.com