Nik and I just got in a little bit ago. Before we left the hospital, we were able to help with Pierce's "cares" for the night. Nik was able to take Pierce's temperature and I was able to help change his diaper, change his blanket, and even lift him up while his nurse positioned the pillow. This was the first time I've held him since that awful Saturday (8 days ago) and what a joyous experience it was! And this was the first time I've been able to hold just him. Last time, I had to hold him on a pillow so I wasn't really able to tell how much he actually weighed. And the best news of all is that Pierce did remarkably well. He typically desats while his cares are done, but tonight, he behaved and didn't have any spells. We are praying for a quiet night and that our little one (along with us) gets a good rest before his big day tomorrow. God has been gracious in continuing to grant us a peace that He is in control. He has done many miraculous things in Pierce's life thus far, and we feel certain that He is going to continue working in our little guy's life. Please join us in praying for a easy recovery from the surgery and that Pierce will make great strides forward in terms of progress.
Here is a picture from tonight... Laura, his amazing nurse, hunted down a teeny tiny pacifier (which still looks huge on P) and cut it so that it'd fit around his vent tube. He loves it! And he even tries sucking on it... kind of hard to do when you have a tiny mouth that's full of tubes.